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05-07-2007, 05:18 PM
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#1
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Senior Member
Join Date: Oct 2006
Location: Berkeley
Posts: 353
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Long wait for coeliac diagnosis
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05-07-2007, 05:42 PM
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#2
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Senior Member
Join Date: Feb 2007
Location: Tucson, AZ
Posts: 4,369
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So-called "modern" celiac diagnosis technique are actually decades old, and some of the most prone to false-negatives of any medical test.
Testing the stool ( www.enterolab.com) for gluten intolerance--imagine that, testing the area of the problem!--is a much better choice, even if it does have to come directly out of one's pocketbook.
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05-07-2007, 10:27 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: Berkeley
Posts: 353
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Thats cool, you just fedex them a turd?
I think I may get tested.
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05-08-2007, 06:53 AM
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#4
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Senior Member
Join Date: Feb 2007
Location: Tucson, AZ
Posts: 4,369
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Kevin,
I think everyone is gluten intolerant, so I'm saving myself the $100 and going on my body's reactions to gluten. Avoidance and re-introduction of foods is the gold standard of "food sensitivity" testing.
Some people need to see the results in order to really steel their resolve, and I support them in that.
Do what you need to do, you'll benefit either way.
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05-08-2007, 10:42 AM
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#5
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Senior Member
Join Date: Oct 2006
Posts: 1,445
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Quote:
Originally Posted by Garrett Smith
Kevin,
I think everyone is gluten intolerant, so I'm saving myself the $100 and going on my body's reactions to gluten. Avoidance and re-introduction of foods is the gold standard of "food sensitivity" testing.
Some people need to see the results in order to really steel their resolve, and I support them in that.
Do what you need to do, you'll benefit either way.
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Can not agree more.
__________________
"Survival will be neither to the strongest of the species, nor to the most intelligent, but to those most adaptable to change."
C. Darwin
Robb's Blog
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07-05-2007, 12:36 PM
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#6
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New Member
Join Date: Jul 2007
Posts: 44
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Any idea on how much this test costs?
Been looking around on the site and can't seem to find a cost.
Thanks
Bri
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07-05-2007, 01:11 PM
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#7
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Senior Member
Join Date: Feb 2007
Location: Tucson, AZ
Posts: 4,369
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On this page, in the Test Panels section, the price is listed after each test's name.
The Stool Test for Gluten Sensitivity is $100. That's the basic one, you can upgrade as you like.
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07-05-2007, 01:28 PM
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#8
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New Member
Join Date: Jul 2007
Posts: 44
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Thanks Dr Garrett!
Tis probably the one page I didn't look at.
I am thinking of ordering this for my wife since our doc thinks she might have an auto immune problem.
Thanks again
Bri
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07-06-2007, 06:15 AM
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#9
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Senior Member
Join Date: Feb 2007
Location: Tucson, AZ
Posts: 4,369
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Absolutely get it, Brian.
You may also want to look into toxicity. I've found no one with an autoimmune condition that wasn't also high on toxic metals (and likely solvents, I just haven't figured out a cost-effective way to test for those yet). I can help you with this part if you'd like--your MD likely won't be familiar with it and/or will only run blood tests (unless acutely toxic, blood tests for metals are as worthless as celiac tests in the blood).
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07-07-2007, 10:05 AM
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#10
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Senior Member
Join Date: Oct 2006
Posts: 1,445
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I was negative on both blood tests, positive via scope (ouch).
Gold standard, as Garrett pointed out: Remove gluten and feel better? that's all you need to know...and possibly all you might want floating around in your medical records...
The home Dx kits do not pose this problem...I'd be selective as to whom you reveal the results however.
__________________
"Survival will be neither to the strongest of the species, nor to the most intelligent, but to those most adaptable to change."
C. Darwin
Robb's Blog
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